Senator Edward Moore Kennedy, known as Teddy, was the biggest champion for those with disabilities in the United States Congress there ever was. His battle with brain cancer led to his death last week, just a couple of weeks after the passing of his sister, Eunice Kennedy Shriver, also a staunch advocate for those with disabilities and creator of Special Olympics.
The youngest of nine children, Senator Kennedy grew up in the shadow of a father who was active politically and in business, his brother Joseph Jr., who died in a plane explosion in WWII, brother John (known as Jack) who became the 35th US President but was assassinated before the end of his first term and brother Robert, who was also active politically and assassinated as he ran for president.
Senator Kennedy’s sister, Rose Marie (known as Rosemary), was considered to have an intellectual disability and her father had her undergo a lobotomy at age 23 hoping to control her mood swings. Instead, it left her incapable of speech and unable to care for herself. She lived in a residential care facility until her death. In 1968 another sister, Eunice, started Special Olympics, created to help people with intellectual disabilities develop self-confidence, social skills and a sense of personal accomplishment, in honor of her sister Rosemary. The senator’s son, Teddy Jr., lost a leg at age 12 because of bone cancer.
Senator Kennedy’s long list of achievements, over 300 bills he sponsored and passed, are highlighted by the Americans with Disabilities Act (ADA), the Family and Medical Leave Act, the Fair Housing Act Amendments of 1988, the Individuals with Disabilities Education Act, the Family Opportunity Act (which gives parents the ability to purchase Medicaid coverage for their children even if they are not low-income); the Help America Vote Act, and the No Child Left Behind Act. His fight for the rights and services that benefit people with intellectual disabilities are unmatched by any other member of Congress.
Unfortunately, the health care reform that Senator Kennedy tried so hard to get passed for most of his career has not yet come to pass. We must continue this fight for him, making sure our voices are heard on the importance of having health care reform that includes recognizing that people with disabilities are best served by receiving their services in their community, not in institutions, that there be no penalty for pre-existing conditions, that people receive necessary services regardless of the type of disability, including autism, that it include grants for training professionals on disability issues, standards for accessibility and usability of medical equipment by people with disabilities and that it lowers the cost of premiums and co-pays so that individuals with disabilities can afford to be covered. Stay informed and advocate for health care reform that will honor a man who did so much in his life to care for those most neglected.
Senator Kennedy once quoted President Hubert Humphrey’s “the moral test of government is how that government treats those who are in the dawn of life, the children; those who are in the twilight of life, the elderly; and those who are in the shadows of life -- the sick, the needy and the handicapped." Society needs to step up and acknowledge those it so often tries to forget.
Keep fighting for what is right-
Diana Stadden
I think Senator Edward Kennedy has a mixed legacy. I'm in my early 50's and I remember the incident at Chappaquidick (sp?)where his car fell into a river and a pretty campaign aide died. If it was not for his money and prestige as a Kennedy, he would probably have served time in jail, at least for leaving the scene of an accident while she was in the car. I also have had difficulty with his spending huge amounts of taxpayers'money for all of his programs to help people. He was a very wealthy man; how much of his personal fortune did he give to charity? Many less wealthy people have given a lot to charity and have served others personally. I like being able to choose the charities to whom I donate money. I have difficulty with the government using my tax dollars for charity programs for which I don't know how effective and efficient they are. I have worked for the government and have seen a lot of fraud and inefficiency. That said, I do think that Senator Kennedy turned his life around and was a more effective and compassionate legislator in his later life. I do like a lot of the elements of the No Child Left Behind Act, but there are definitely some provisions of it that could be improved.
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